Support for children with juvenile arthritis

August 15, 2017 Administrator

It is important to discuss school problems with patients, family and, if necessary, representatives of the school.

Overall, sick children with juvenile arthritis achieve success in school, and healthy children. However, patients with juvenile arthritis are often absent in the classroom because of sudden acute illness, infections, visits to the doctor. Due to morning stiffness patients may be late to school. The disease affects the opportunities to participate in physical education, transition from class to class and writing. Children with uveitis require different adaptations because of difficulties with vision. With this need to fight and make every effort to ensure that visual recovery was successful.

Usually such children at school allowed to use a lift and computers, to stretch in class, given more time to transition from class to class and for writing tests, they need a second set of books and a load change in gym class. Every child can receive education in an environment with the least disability. In more severe cases, a formal individual educational plan.

Such people often need psychological support, as with any chronic disease, especially the chronic administration of drugs. The patient and family should be maintained, preventing the onset of the crisis. That help is needed, such as modifying the appearance of the body due to intake of corticosteroids, the occurrence of nausea from methotrexate or problems with treatment adherence. Social workers can help with financial problems caused by the disease and cost of medication.

An important issue of patient — transition to adulthood, including the transition in health care to an adult rheumatologist, education and the planning profession. These problems should begin to discuss and plan to adulthood. The available data indicate that the transition to the adult clinic leads to the best results if it is scheduled, while the disease is controlled during the transfer to the adult rheumatologist. The policy of transfer adopted by the major groups of doctors first link, with special attention to health problems in younger patients, who grew up with juvenile arthritis.

Support also advocacy group to protect the interests of patients, such as the Union of juvenile arthritis sponsored by the arthritis Foundation. The arthritis Foundation supports regional and national meetings, camps arthritis, production of educational materials, newsletters and discussion forums on the issue of juvenile arthritis. Other important sources of learning material provide the American College of rheumatology and the international organization for the study of pediatric rheumatology, on the website the latest information on juvenile arthritis present in more than 30 languages.