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The Childhood Arthritis and Rheumatology Research Alliance (CARRA) is a North American organization of more than 425 pediatric rheumatologists, researchers and research coordinators who are working together to to advance the health and quality of life of children living with pediatric rheumatic diseases. 

MISSION: The mission of CARRA is to conduct collaborative research to prevent, treat and cure pediatric rheumatic diseases.

VISION: CARRA's vision is a world free of limitations from pediatric rheumatic diseases.

The CARRA Registry is a network of CARRA pediatric rheumatology research centers across North America dedicated to catapulting the field of pediatric rheumatology research to the level of performance necessary to realize dramatic improvements in the outcomes and quality of life for all children with rheumatic disease.

Through the creation of a unifying, scalable informatics infrastructure and the engagement of families, patients, and communities, The CARRA Registry will provide the opportunity for affected children at every CARRA clinical research site to participate in high-quality clinical and translational research.

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Your child may be eligible to participate in a research project collecting information and increasing the understanding of childhood rheumatic diseases.

The CARRA Registry

The CARRA Registry is an observational study that enrolls children and adolescents with major rheumatic diseases followed at participating study sites.  The original "Legacy" CARRA Registry is now complete and enrolled 9587 patients with the following diseases: 

  • Juvenile idiopathic arthritis (JIA)
  • Systemic lupus erythematosus (SLE)
  • Multiple connective tissue disease (MCTD)
  • Juvenile dermatomyositis (JDM)
  • Localized scleroderma (LS)
  • Systemic sclerosis (SS)
  • Vasculitis
  • Sarcoid
  • Juvenile primary fibromyalgia syndrome (JPFS)
CARRA wants to thank each and every patient and family that participated in the Legacy Registry! We now have a rich database of information that researchers continue to study.  Please see our Publications tab for the latest research results.

The new CARRA Registry started enrolling patients in the summer of  2015. 
Continuation of the CARRA Registry will support data collection on patients with pediatric-onset rheumatic diseases and will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.

To find out more about the new CARRA Registry and participating centers, search for "CARRA Registry" on
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